Diagnosis Date

Diagnosed December 3rd 2009





















Friday, November 29, 2013

Has this blog been any benefit or blessing to you ?

Gary and I made a choice when he was diagnosed with ALS to blog stories of our journey. We were driven then to do this because  when the docs diagnosed Gary they gave him 4 - 7 months to live. Literally said go home and get your stuff in order because you have 4 - 7 months to live. So when we started educating ourselves and seeing there was more than one way to handle this diagnosis we wanted to share it with anyone that may be finding themselves in that same situation. So they would not give up hope and just accept the 4-7 months as we did at first. So maybe time would not be lost looking for help that this blog could somehow get them answers faster. The disease and changes occurring in our lives were already emotionally draining and to have to read through all the ups and downs of ALS was very hard for both of us. So our hearts desire was to help sift through and hopefully help save some very precious time by sharing what we have tried and how it seems to have been working.

So meanwhile we posted a lot of different information that was helpful to us as we made the journey. Some seemed helpful at that time, some still seems helpful and some we can no longer afford so we have had to take other avenues and as we change that course how we see positives and negatives.  But one goal has been the same to share honestly our journey.

We also have used this blog to share family stories. I now know that we can literally print out this blog and keep it as a journal to this chapter of our lives. A journal for the kids and grand kids. A journal to witness the ups and downs. A journal to read as they are older how important their interaction with Dad and/or Grandpa was during his illness and also how important these interactions are to help support Ashley, Lance and I,  as we are part of the front line battlefield daily with Gary.

So now back to the original question. Has this blog been beneficial to you in anyway?
Please do share any and all comments. We have shared some stories but not all of course.Are there other stories of interest. Do you like some stories more than other stories? We are curious to see what changes we can make at this time. Maybe we need to get back to our original purpose to help others with information we are benefiting from concerning ALS. We may need to turn to having two separate blogs one as a journey of information and one for the emotional  journey maybe one just for family events even though I think they are all of one journey. Do you come back to the blog often to get updates even though you are not listed as a follower ? How did you find this blog? Gary and I made a pack with each other a long time ago if our story can bless another in either... what to do or what not to do we will be transparent to share it. God has made major transformation in our lives and is still at work in us. Please feel free to share any and all your thoughts because they are all valuable...
We see that we are getting a lot of hits on the blog and are very excited about it. Even in this very isolated stage in our lives our desire is to make a difference for the good in others lives. Please share your answers.

Happy Thanksgiving to all of you who visit today. Many blessing to you and your family.

Gary and Sonja Mitchell






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